Clinical biobanks and registers

The research conducted in molecular medicine at Umeå University strongly benefits from the patient samples available from the biobanks and related clinical registry data.

The County Council is responsible for the clinical registry data and for collecting and storing biobank material. Umeå University on the other hand ensures that register- and biobank research is conducted through coordination by the Department of Biobank Research (EBF).

The Northern Sweden Health and Disease Study (NSHDS) biobank is an extensive collection of biosamples and related clinical registry data which positions it as one of the largest and most well characterized prospective population-based biobanks in the world. The largest cohort, Västerbotten Intervention Project, is a population-based (samples from 80% of the adult population) cohort with blood and data from 110,000 individuals at 140,000 sampling occasions, started 1985 and still recruiting. Data includes fasting/post-challenge blood glucose, lipid levels, blood pressure, anthropometry, cost and life-style data of adults aged 30-80 years with repeated samples and examinations at 10-yrs intervals on >40,000 individuals. The samples are of highest quality, separated and frozen at -80 degrees C within one hour. The samples and data may be linked to other registers and dedicated research biobanks with samples and registry data collected before, during and after therapy.